butterfly minds


Posted on: July 27, 2013

A shared experience ” Scott”

my friend Sue has written about her and her sons achievements
well done Sue and Scott. .

Scott’s Story by Susan Taylor

My son Scott is 11yrs old and was diagnosed with Aspergers Syndrome in April 2012. This is his story of the struggles we have gone through to get him to where he is today..

Scott’s problems began not long after he started in Yr3, he struggled to settle in to the extra pressure and it wasn’t helped with his Primary School splitting the Yr3 and Yr4 classes and making two classes of mixed yrs. We spent alot of time at the school during Yr3 and Scott became labelled as a “problem child” which meant that if anything happened they always looked at Scott before anyone else even if it wasn’t Scott’s fault.

As time progressed Scott became more anxious and angry especially at school and this only got worse as he moved forward into Yr4. It was brought to our attention in a meeting with his Yr4 teacher and Scott’s headmistress that they thought that he had autism. My husband Paul and I were devastated because as parents it is the last thing that you want to hear that your child may have a long term problem. We agreed for his teachers to put Scott forward to be tested and see a specialist to see if the experts agreed.

Scott became more difficult as time went on not only at school but at home as well. He became very short tempered with alot of things especially with his younger brother William and would lash out at him, he also became very emotional, it was extremely hard to read his moods.

He also had panic attacks quite often at school but not a home because he thought of home as his safe place so we hadn’t seen what he could be like until I went to his Harvest Festival that year.

Now you must understand that until Yr4 Scott had always taken part in all of the performances that took place throughout the school year in previous years so we had no reason to think that there would be a problem.

I arrived in plenty of time and got a seat near the front so that Scott could see me, I was so proud to see him on stage as any mum would be. He kept biting his fingers but I just thought it was nerves. So the show started and his headmistress gave her usual speech before any performance and then one of the Yr5 children stood up and spoke about harvest time. I thought this will be good because I loved to hear Scott sing and perform but sadly it was not to be.

As soon as they all stood up to sing Scott freaked. In the space of about 10 seconds the emotion that went across his face went from calm to anger to fear and then tears. In those 10 seconds my heart broke and I knew that I had to get to my son and get him out of there. We left the hall and sat on the stairs outside together and after a few minutes Scott had calmed down and was talking to me about what had happened, he couldn’t understand why it had happened and in that moment I realised that yes my son had a problem.

We went home after school and everything was fine, I spoke to Paul later that evening about what had happened and I cried as I told him because I said that when it happened I thought to myself that this is not my little boy, he doesn’t normally do this but when I spoke to his teacher after the harvest festival he said that it was how Scott became when he had a panic attack.

We stepped up the urgency of getting Scott assessed so that we could help him as soon as possible. Scott saw a specialist a few times but the process still took ages, we had various home visits, different experts met Scott at school to see what he was like in that environment and all the while we were trying to help Scott come to terms with the fact that he may have a form of autism.

When Scott became angry it was more to do with the fact that he didn’t understand what he had and that we couldn’t help him as much as we wanted to because we didn’t know what form of autism he had.

Yr4 ended and he still struggled but in Yr5 we came to a turning point. It was in January 2012 when his Yr5 teacher had to have some time off because of having an operation which meant that they had to have a supply teacher. We thought this was going to be really difficult but we were completely wrong, his supply teacher was amazing with Scott. She knew exactly how to handle him and to get the best out of him. Scott adored her and he started to come round to the fact that he had autism.

Finally in Easter 2012 we received the news we had been waiting for that Scott had officially been diagnosed with Aspergers Syndrome. It was such a relief to know that it was Aspergers and that we could do some proper research about it and how to help him.

Since being diagnosed last year Scott has come a long way he also now has his special educational statement which means he gets the one to one help he has urgently needed. He is in Yr6 now and although he had a tough start to this year he is doing brilliantly now. We always take one day at a time with him but I am amazed with his progress and so proud of him.

His Yr6 teacher is brilliant with him and his teaching assistant who works with him one to one is absolutely amazing we can’t give her enough praise. Before Scott started Yr6 he would always wear his baseball cap in class and when he was feeling particularly anxious he would pull the cap down to cover his eyes. But only 2 wks in to Yr6 the cap was gone from lessons apart from P.E. Scott still has to have his hat when ever he goes outside but we are all fine with that.

Although we do still struggle with his moods at home and his temper towards William we are learning to read the signs and if needed we remove Scott to a separate room so that he can calm down.

Scott has a major fear to most tests but he has recently completed his Yr6 SATS and although we had a couple of false starts he has got fantastic marks. He has also started the transition from primary school to secondary school because he starts in September and the teachers from both schools have been amazing with him and very patient. Scott has got a place in the secondary school’s DSP (Designated Special Provisions) Unit which means he will continue to receive lots of help once he starts in September.

We do have problems finding information about things in our local area sometimes but with more research we will get there. I know that at the end of the day it is Scott that has to live with his Aspergers for the rest of his life but I know that he is a very intelligent wonderful boy and that as a family we will learn together.

So I say to you that when autism is mentioned for the first time you may feel like I did. I felt that my world was falling apart but I know from personal experience that you can get through it, you can accept it and live with it and as we tell Scott he doesn’t have a problem as alot of people look at it he is just special…

I hope that Scott’s story helps you understand a little more about Aspergers Syndrome and how honoured and proud I am to have Scott as my son


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